The Madison Rose Heart Project is a non-profit foundation supporting the CHD community, raising awareness and funds to give back in honor of our heart angel, Madison Rose.
At 20 weeks, Madison was diagnosed with the CHD, HRHS (Hypoplastic Right Heart Syndrome). The doctors remained positive and Madison was born on June 17, 2016, at Morgan Stanley Children’s Hospital at NY Presbyterian. Following her first open heart surgery almost two weeks after birth, she was listed for heart transplant.
Madison was one day shy of her 12-week birthday when she passed away suddenly on September 8, 2016, and sadly never left the NICU while waiting for her new heart. She fought hard and went through more than most people will ever go through in their lifetime during those 2 1/2 months: one open heart surgery, 1 cath procedure in addition to countless other procedures, picclines, IVs, ARTlines, echos, EKGs, blood transfusions and daily bloodwork.